Haemophilia is an international journal dedicated to the exchange of information regarding the comprehensive care of haemophilia. The Journal contains review articles, original scientific papers and case reports related to haemophilia care, with frequent supplements. Subjects covered include:clotting factor deficiencies, both inherited and acquired: haemophilia A, B, von Willebrand's disease, deficiencies of factor V, VII, X and XIreplacement therapy for clotting factor deficienciescomponent therapy in the developing worldtransfusion transmitted diseasehaemophilia care and paediatrics, orthopaedics, gynaecology and obstetricsnursinglaboratory diagnosiscarrier detectionpsycho-social concernseconomic issuesauditinherited platelet disorders.
《血友病》是一本国际期刊,致力于血友病综合治疗相关信息的交流。该杂志包含与血友病护理相关的综述文章、原始科学论文和病例报告,并经常增补。涵盖的主题包括:凝血因子缺乏症,包括遗传性和获得性:血友病A、B、血管性血友病、凝血因子V、VII、X和XI缺乏症凝血因子缺乏症的替代疗法发展中国家的成分疗法输血传播疾病血友病护理和儿科、骨科、妇产科护理实验室诊断载体检测心理社会问题经济问题审核遗传性血小板疾病。
Clinical advances in gene therapy updates on clinical trials of gene therapy in haemophilia
来源期刊:HaemophiliaDOI:10.1111/hae.13816
Immune tolerance induction in paediatric patients with haemophilia A and inhibitors receiving emicizumab prophylaxis
来源期刊:HaemophiliaDOI:10.1111/hae.13819
Emicizumab: Review of the literature and critical appraisal
来源期刊:HaemophiliaDOI:10.1111/hae.13641
The national blueprint for future factor VIII inhibitor clinical trials: NHLBI State of the Science (SOS) Workshop on factor VIII inhibitors
来源期刊:HaemophiliaDOI:10.1111/hae.13717
The bleeding score: Useful in predicting spontaneous bleeding events in adults with bleeding of unknown cause?
来源期刊:HaemophiliaDOI:10.1111/hae.13775
Measurement of joint health in persons with haemophilia: A systematic review of the measurement properties of haemophilia‐specific instruments
来源期刊:HaemophiliaDOI:10.1111/hae.13631
An overview of turoctocog alfa pegol (N8‐GP; ESPEROCT®) assay performance: Implications for postadministration monitoring
来源期刊:HaemophiliaDOI:10.1111/hae.13897
Fibrinogen concentrates in hereditary fibrinogen disorders: Past, present and future
来源期刊:HaemophiliaDOI:10.1111/hae.13876
Recommendations for the clinical interpretation of genetic variants and presentation of results to patients with inherited bleeding disorders. A UK Haemophilia Centre Doctors’ Organisation Good Practice Paper
来源期刊:HaemophiliaDOI:10.1111/hae.13637
Can we compare haemophilia carriers with clotting factor deficiency to male patients with mild haemophilia?
来源期刊:HaemophiliaDOI:10.1111/hae.13891
Population‐based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources
来源期刊:HaemophiliaDOI:10.1111/hae.13734
From the voices of people with haemophilia A and their caregivers: Challenges with current treatment, their impact on quality of life and desired improvements in future therapies
来源期刊:HaemophiliaDOI:10.1111/hae.13754
Comparison of the efficacy and safety of 12‐month low‐dose factor VIII tertiary prophylaxis vs on‐demand treatment in severe haemophilia A children
来源期刊:HaemophiliaDOI:10.1111/hae.13770
PEGylated biologics in haemophilia treatment: Current understanding of their long‐term safety
来源期刊:HaemophiliaDOI:10.1111/hae.13875
The national blueprint for 21st century data and specimen collection and observational cohort studies: NHLBI State of the Science Workshop on factor VIII inhibitors
来源期刊:HaemophiliaDOI:10.1111/hae.13772
Congenital Factor X deficiency in women: A systematic review of the literature
来源期刊:HaemophiliaDOI:10.1111/hae.13729
Healthcare professionals in the ‘tainted blood’ era in Canada: Their forgotten emotions
来源期刊:HaemophiliaDOI:10.1111/hae.13805
Executive summary of the NHLBI State of the Science (SOS) Workshop: Overview and next steps in generating a national blueprint for future research on factor VIII inhibitors
来源期刊:HaemophiliaDOI:10.1111/hae.13713
Consensus statements on vaccination in patients with haemophilia—Results from the Italian haemophilia and vaccinations (HEVA) project
来源期刊:HaemophiliaDOI:10.1111/hae.13756
Thrombin and plasmin generation in patients with plasminogen or plasminogen activator inhibitor type 1 deficiency
来源期刊:HaemophiliaDOI:10.1111/hae.13842
Prevalence and risk factors associated with hepatitis C among Brazilian male patients with haemophilia: A long‐term follow‐up
来源期刊:HaemophiliaDOI:10.1111/hae.13728
Cross‐sectional comparative study of pharmacokinetics and efficacy between sucrose‐formulated recombinant factor VIII (Kogenate®) and BAY 81‐8973 (Kovaltry®) in patients with severe or moderate haemophilia A in prophylaxis
来源期刊:HaemophiliaDOI:10.1111/hae.13733
Factor VIII prophylaxis effects outweigh other hemostasis contributors in predicting severe haemophilia A joint outcomes
来源期刊:HaemophiliaDOI:10.1111/hae.13778
Emicizumab prophylaxis to facilitate anticoagulant therapy for management of intra‐atrial thrombosis in severe haemophilia with an inhibitor
来源期刊:HaemophiliaDOI:10.1111/hae.13721
The effects of six‐week resistance, aerobic and combined exercises on the pro‐inflammatory and anti‐inflammatory markers in overweight patients with moderate haemophilia A: A randomized controlled trial
来源期刊:HaemophiliaDOI:10.1111/hae.13764
Evaluation of pre‐analytic heat treatment protocol used in the CDC Nijmegen‐Bethesda assay for heat inactivation of extended half‐life haemophilia treatment products
来源期刊:HaemophiliaDOI:10.1111/hae.13901
An update on the new classification of Ehlers‐Danlos syndrome and review of the causes of bleeding in this population
来源期刊:HaemophiliaDOI:10.1111/hae.13800
Whole blood ristocetin‐induced platelet impedance aggregometry does not reflect clinical severity in patients with type 1 von Willebrand disease
来源期刊:HaemophiliaDOI:10.1111/hae.13725
Effect of low‐dose factor VIII prophylaxis therapy on bone mineral density and 25(OH) vitamin D level in children with severe haemophilia A
来源期刊:HaemophiliaDOI:10.1111/hae.13917
Reagent substitution in the chromogenic Bethesda assay for factor VIII inhibitors
来源期刊:HaemophiliaDOI:10.1111/hae.13827
Expecting the unexpected: Acquired haemophilia A in a patient with homozygous factor V deficiency
来源期刊:HaemophiliaDOI:10.1111/hae.13669
Postmarketing safety and effectiveness of recombinant factor IX (nonacog alfa) in Japanese patients with haemophilia B
来源期刊:HaemophiliaDOI:10.1111/hae.13783
The prevalence and burden of hand and wrist bleeds in von Willebrand disease
来源期刊:HaemophiliaDOI:10.1111/hae.13632
Screening urinalysis demonstrates that haematuria is a frequent finding in persons with haemophilia treated at a paediatric haemophilia treatment centre
来源期刊:HaemophiliaDOI:10.1111/hae.13815
Characteristics and management of the haemophilia‐associated pseudotumours
来源期刊:HaemophiliaDOI:10.1111/hae.13870
Haemophilia Experiences, Results and Opportunities (HERO study) in Brazil: Assessment of the psychosocial effects of haemophilia in patients and caregivers
来源期刊:HaemophiliaDOI:10.1111/hae.13774
Age‐related severity and distribution of haemophilic arthropathy of the knee, ankle and elbow among Chinese patients with haemophilia
来源期刊:HaemophiliaDOI:10.1111/hae.13858
Rhenium‐188 radiosynovectomy for chronic haemophilic synovitis: Evaluation of its safety and efficacy in haemophilic patients
来源期刊:HaemophiliaDOI:10.1111/hae.13880
Coagulation factor VIII is vital for increasing global coagulation after physical exercise
来源期刊:HaemophiliaDOI:10.1111/hae.13652
The Paediatric Haemophilia Activities List (pedHAL) in routine assessment: changes over time, child‐parent agreement and informative domains
来源期刊:HaemophiliaDOI:10.1111/hae.13835
Acute Hepatitis E Virus infection in a hemophilic patient with acquired inhibitor during immune tolerance therapy according to modified Bonn‐Malmö protocol
来源期刊:HaemophiliaDOI:10.1111/hae.13688
Nutritional status of children and adolescents with haemophilia in Basra, Iraq
来源期刊:HaemophiliaDOI:10.1111/hae.13837
Predictive factors of immune tolerance treatment response in severe haemophilia A patients with inhibitors: A real‐world report from a single centre, mixed retrospective‐prospective long‐term study
来源期刊:HaemophiliaDOI:10.1111/hae.13660
Why plasma‐derived factor VIII?
来源期刊:HaemophiliaDOI:10.1111/hae.13705
Clinical application of Web Accessible Population Pharmacokinetic Service—Hemophilia (WAPPS‐Hemo): Patterns of blood sampling and patient characteristics among clinician users
来源期刊:HaemophiliaDOI:10.1111/hae.13882
Continuous infusion of simoctocog alfa in haemophilia A patients undergoing surgeries
来源期刊:HaemophiliaDOI:10.1111/hae.13625
Coping strategies in young and adult haemophilia patients: A tool for the adaptation to the disease
来源期刊:HaemophiliaDOI:10.1111/hae.13743
A rare presentation of homozygous factor X deficiency in a pregnant patient: A case report and review of the literature
来源期刊:HaemophiliaDOI:10.1111/hae.13654
Factor IX inhibitors: Clinical and laboratory profiles of two patients with severe haemophilia B
来源期刊:HaemophiliaDOI:10.1111/hae.13696
Periprocedural management of von Willebrand disease: An institutional experience
来源期刊:HaemophiliaDOI:10.1111/hae.13718